Dysautonomia Support Network
Dysautonomia Support Network
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Dysautonomia and Service Dogs | Blythe Bouchard (Neer) | Dyscovery Education
Welcome back to Dyscovery Education! In this episode, we are joined by Blythe Neer, a multi-certified dog trainer specializing in service dogs and scent detection, to discuss everything you need to know about service dogs for those with dysautonomia.
Together, we will explore
*Ways in which dogs can help those with dysautonomia, (2:15)
*Whether they can alert to episodes, (9:51)
*Things to consider before getting a service dog (13:53)
*How to obtain a service dog and (17:49)
*What service dog training looks like. (22:02)
About Blythe
Blythe Neer is a multi-certified dog trainer specializing in service dogs and scent detection. She has dysautonomia as well as several other chronic illnesses and got her start in dog training due to those things. She has worked with over 100 service dog handlers to help train their own dogs worldwide, and is the first to create a fully self paced scent training program for a variety of needs and disabilities. She has two dogs of her own, including her own service dog, and she lives in Northern Colorado. Her favorite clients are dedicated to their dog's wellbeing above all and excited to learn the "whys" of dog training.
To connect with Blythe at Delta Tails LLC, visit www.deltatails.com/.
For more information on dysautonomia, please visit www.dysautonomiasupport.org.
And if you find these videos helpful, please consider supporting continued Dyscovery Education videos by donating to the Dysautonomia Support Network at donorbox.org/donate-to-dysautonomia-support-network.
Disclaimer: The information presented in these videos is for informational, and educational purposes only. This information or the use thereof does not create any patient-physician/practitioner relationship, and should not be used as a substitute for professional diagnosis and treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment before undertaking a new healthcare regimen. Never disregard professional medical advice or delay in seeking it because of something you have viewed in this video and others on this channel. Dysautonomia Support Network and its Board of Directors expressly disclaim responsibility and shall have no liability, for any damages, loss, injury, or liability whatsoever suffered as a result of your reliance on the information contained on this site. Dysautonomia Support Network does not endorse or recommend any speaker.
Переглядів: 731

Відео

Medical Gaslighting in the Chronic Illness Community | Melissa Geraghty, Psy.D. | Dyscovery Edu.
Переглядів 1,6 тис.Рік тому
Welcome! Tonight, Dr. Melissa Geraghty will help you “dyscover” all about medical gaslighting in the chronic illness community. She will shed light on this important issue that many individuals with dysautonomia face in their healthcare journey. In this video, you will learn: What medical gaslighting is (1:45) Gaslighting Techniques (2:07) Examples of Medical Gaslighting (2:34) Medical Gaslight...
Q&A with Dr. Kevin Lasko | Dyscovery Education
Переглядів 1,2 тис.Рік тому
Welcome back to our channel! In this video, we have Dr. Kevin Lasko, a renowned Chiropractic Neurologist, answering your questions on understanding the central control mechanisms of the autonomic nervous system. In our previous videos, Dr. Lasko shared insights into how he uses neurorehabilitation exercises to target dysfunction in the autonomic nervous system and brain. In this Q&A session, Dr...
Understanding Central Control Mechanisms of the ANS Part 2 | Kevin Lasko| Dyscovery Education
Переглядів 1,9 тис.Рік тому
“Dyscover” the central control mechanisms of the autonomic nervous system in Part 2 of a conversation with Dr. Kevin Lasko. 01:37 Recap 2:20 Partnering Chiropractic Neurology with current dysautonomia treatments 19:43 Central Control Mechanism of the ANS: Baroreflex 33:49 Closing Dr. Lasko is a Board Certified Chiropractic Neurologist in Pennsylvania. He is a Fellow of the International Academy...
Understanding Central Control Mechanisms of the ANS Part 1 | Kevin Lasko | Dyscovery Education
Переглядів 2,4 тис.Рік тому
“Dyscover” the central control mechanisms of the autonomic nervous system in Part 1 of a conversation with Dr. Kevin Lasko. 3:33 Current Dysautonomia Treatment and Protocols 17:35 Understanding the ANS 23:58 Neurological Evaluation 35:28 Sensory Driven 44:07 Lack of Inhibition Dr. Lasko is a Board Certified Chiropractic Neurologist in Pennsylvania. He is a Fellow of the International Academy of...
Master Medicare with Margo| Margo Steinlage | Dyscovery Education
Переглядів 553Рік тому
“Dyscover” everything you need to know to master medicare! Many within our community qualify for Medicare due to age or disability status. Even if Medicare does not apply to you now, it might apply to your parents or grandparents. Tune in to this event showcasing the following: *Who is eligible for Medicare (4:26) *Working after 65? (5:55) *Using HSAs (9:36) *What is Medicare (10:20) *How to fi...
The Role & Treatment of Autonomic Dysfunction in Sleep Disorders |Dr. Pocinki| Dyscovery Education
Переглядів 8 тис.Рік тому
Dyscover great information on the role and treatment of autonomic dysfunction in sleep disorders. If you have dysautonomia and have trouble with sleeping, including not being able to fall asleep, waking up frequently during your sleep, and waking up feeling as if you had not slept at all, then this video is for you! Learn about: *The role of the autonomic nervous system in sleep (1:44) *Factors...
DSN 2022 Highlights
Переглядів 54Рік тому
2022 has been an incredible year at DSN! We have had such tremendous growth as we strived to create a community that empowers and supports those impacted by dysautonomia to live their best lives! We could no have done it without you, our amazing community. We have been busy planning for 2023 and are excited about what is in store! Have a Happy New Year, everyone! #2022Review #HappyNewYear #Welc...
Managing the Holidays with POTS | Kristine Trimble PT, DPT | Dyscovery Education
Переглядів 382Рік тому
Join Physical Therapist Kristine Trimble, PT, DPT as she discusses how to survive the holidays with POTS. Her strategies also work well for other forms of dysautonomia. Learn about energy conservation strategies, pacing, symptom management, and the importance of recharging. We hope everyone has a wonderful Holiday Season and a Happy New Year! For more information on dysautonomia, please visit w...
Workplace Accommodations | Julie Hill | Dyscovery Education
Переглядів 335Рік тому
Dyscover great information about workplace accommodations for those with dysautonomia. Learn all about relevant legislation concerning workplace accommodations, how to request accommodations, and the various types of accommodations that might be helpful. Julie Hill, PhD, NCC, CRC, ALC, is an assistant professor and clinical coordinator in the Clinical Rehabilitation Counseling Program in the De...
Health Management Strategies for POTS | Joanna Behm & Christine Porcaro | Dyscovery Education
Переглядів 470Рік тому
Dyscover health management strategies for individuals with POTS. Join Joanna Behm and Christine Procaro from Messiah University as they explore the results of a survey of individuals with POTS in our community. They look to answer the question, "Among individuals with POTS, what health management strategies are used to impact their quality of life?" Joanna Behm, EdD, OTR/L is a professor of occ...
Assistive Technology for School Aged Children with Dysautonomia | Erin Boersma | Dyscovery Education
Переглядів 381Рік тому
Join Occupational Therapist Erin Boersma, MS, OTRL, as she discusses the use of assistive technology for school-aged children with dysautonomia. Learn more about what assistive technology (AT) is and how to use AT to help with fatigue/brain fog as well as orthostatic intolerance. Erin is a Consultant for Dysautonomia Support Network and has been involved with the dysautonomia community since 20...
Dysautonomia & Nutrition | Jill Brook | Dyscovery Education
Переглядів 9 тис.Рік тому
Welcome to our inaugural episode of Dyscovery Education. Join Jill Brook, as she discusses dysautonomia and nutrition. Discover what we know so far and what you can potentially do to help yourself feel better. Jill is a nutritionist with over 20 years of experience as well as a fellow dysautonomia warrior. She is an accomplished researcher and author and provides nutrition consultations for The...
Dyscovery Education
Переглядів 554Рік тому
Are you stuck trying to figure out how to manage your dysautonomia symptoms? Are you confused about how to incorporate different treatment options into your life? Want to know what the latest research is saying and have a greater understanding of the forms of dysautonomia and its co-occurring conditions? Then tune into Dyscovery Education, where we bring you education and solutions from experts...
Dysautonomia Support Network- About Us
Переглядів 5722 роки тому
Dysautonomia Support Network’s Mission is to provide a Community that Empowers and Supports those impacted by dysautonomia to live their best lives. Being diagnosed and living with dysautonomia can be a life-altering event. Individuals living with dysautonomia - and their loved ones - often require a variety of resources and support. DSN is a group of committed volunteers who are passionate abo...
05/2020- DSN in 2020 and Beyond
Переглядів 2944 роки тому
05/2020- DSN in 2020 and Beyond
Service Dogs for Independence Workshop, Courtney & Zido Williams Neuro Connect Summit 2019
Переглядів 2634 роки тому
Service Dogs for Independence Workshop, Courtney & Zido Williams Neuro Connect Summit 2019
Advocating in Schools, Jane Taft, Neuro Connect Summit 2019
Переглядів 1684 роки тому
Advocating in Schools, Jane Taft, Neuro Connect Summit 2019
Ehlers Danlos Society, Lara Bloom, Neuro Connect Summit 2019
Переглядів 1974 роки тому
Ehlers Danlos Society, Lara Bloom, Neuro Connect Summit 2019
Self Advocacy in the healthcare setting, Amanda Aikulola LPN, Neuro Connect Summit 2019
Переглядів 1864 роки тому
Self Advocacy in the healthcare setting, Amanda Aikulola LPN, Neuro Connect Summit 2019
Disability, Jon Rodis and Kathleen Kane Esq, Neuro Connect Summit 2019
Переглядів 2784 роки тому
Disability, Jon Rodis and Kathleen Kane Esq, Neuro Connect Summit 2019
Self Advocacy with friends & family, Cathryne Maciolek, PsyD, Neuro Connect Summit 2019,
Переглядів 1514 роки тому
Self Advocacy with friends & family, Cathryne Maciolek, PsyD, Neuro Connect Summit 2019,
Advocacy 101, Kendra Myles, Neuro Connect Summit 2019
Переглядів 404 роки тому
Advocacy 101, Kendra Myles, Neuro Connect Summit 2019
Social Media Advocacy, Taylor Kane, Neuro Connect Summit 2019
Переглядів 674 роки тому
Social Media Advocacy, Taylor Kane, Neuro Connect Summit 2019
Advocating for family members, Cathy Pederson PH.D., Neuro Connect Summit 2019
Переглядів 784 роки тому
Advocating for family members, Cathy Pederson PH.D., Neuro Connect Summit 2019
Young Adult Patient Advocacy, Antonio Maltese, Neuro Connect Summit 2019
Переглядів 364 роки тому
Young Adult Patient Advocacy, Antonio Maltese, Neuro Connect Summit 2019
Chronic Resiliency & Pain Management, Lynne Julian,, Neuro Connect 2019
Переглядів 634 роки тому
Chronic Resiliency & Pain Management, Lynne Julian,, Neuro Connect 2019
Panel Discussion, Devlin , Luciano, Bloom, Maciolek, Neuro Connect 2019
Переглядів 585 років тому
Panel Discussion, Devlin , Luciano, Bloom, Maciolek, Neuro Connect 2019
Mindfulness and Pain Management Strategies Dr. Cathryne Maciolek, PsyD, Neuro Connect Summit 2019
Переглядів 1435 років тому
Mindfulness and Pain Management Strategies Dr. Cathryne Maciolek, PsyD, Neuro Connect Summit 2019
Treating CSF Disorders: when too much is too much, Mark Luciano MD, PhD, Neuro Connect Summit 2019
Переглядів 5075 років тому
Treating CSF Disorders: when too much is too much, Mark Luciano MD, PhD, Neuro Connect Summit 2019

КОМЕНТАРІ

  • @RagnarLothbrok2222
    @RagnarLothbrok2222 7 днів тому

    I’ve got all these symptoms and is awful shit

  • @mysubscriptions5619
    @mysubscriptions5619 26 днів тому

    If you've really been around the block, you know any doctor mentioning "Irritable bowel syndrome" (worthless trashcan diagnosis) immediately discredits them. Why can't these guys identify a damn cause 99% of the time? it's such a common problem with them. GI doctors are the laziest, worst doctors. Zero critical thinking it's like they're some glorified Google bots. I've been through absolute hell and they've never helped...

  • @coya4321
    @coya4321 Місяць тому

    Benzos are also mast cell stabilizers

  • @BeastLordofMetal
    @BeastLordofMetal 2 місяці тому

    If I am to take b1, should I be concerned with side effects or depletion of other nutrients with higher doses

  • @Gregjohnshaftmansons
    @Gregjohnshaftmansons 2 місяці тому

    Wow.. this is powerful now that! Understand what it is about

    • @DysSupport
      @DysSupport 2 місяці тому

      This is a favorite! Doing whatever we can to bring awareness.

  • @judithdesrosiers-qm9wt
    @judithdesrosiers-qm9wt 2 місяці тому

    Eat lying on your stomach ????even with y hyper mobility I would still choke

  • @lawfuldossier
    @lawfuldossier 3 місяці тому

    Oh this was such a healing video! Thank you so very much for this❤

  • @aziblas8299
    @aziblas8299 3 місяці тому

    Also the other Dr has assaulted me in the examination room but no one has done anything about my complaint! Gets worse! The closer-called the police and medical insurance company!

  • @cherylharres6492
    @cherylharres6492 3 місяці тому

    Is there ANY LINK with premature birth and Gastroparesis?

    • @DysSupport
      @DysSupport 3 місяці тому

      No, we do not have any links for this

    • @cherylharres6492
      @cherylharres6492 3 місяці тому

      @DysSupport thank you. I had heard some time back there was. My 43 yo daughter just past 24Nov23 from this. She was born at 26 weeks and weighed less than 2 lbs.

  • @anushareju6431
    @anushareju6431 3 місяці тому

    9 mm herniation. Need surgery. If any life threatning?

  • @lotrhpnmask
    @lotrhpnmask 3 місяці тому

    dr recently said iron was a little low, said not much , no reasons why but determined to find something but never thinks about the actual conditions being involved with why. im also allergic to nuts and olive so im trying to work around foods with that in it. i tend react to lot of things , the only thing an allergist said was, 'your system is just touchy i guess just avoid stuff" no real reason or what is going on. or real advice or help. way most doctors in my entire town act with conditions. they don't even want to send me to a pots specialist.

  • @TallDiana
    @TallDiana 3 місяці тому

    I’m way too sick to train a dog. I’ve been in this room 99% of the time for eight years. I have an emotional support dog that has cancer and months to live. I can’t imagine not having another dog, but can barely get him to the door for potty time. I might have a little life if I had a service dog and a power chair, but I’m definitely too poor to buy them, and too sick to train a dog.

  • @TallDiana
    @TallDiana 3 місяці тому

    I’m hyper mobile, have full body neuropathy and dysautonomia on top of a thirty year old spinal cord injury. Much of my pain these days is burning, which isn’t easy to control with medication, but for decades I had severe back and leg pain below my injury. I’ve also suffered for years with trigeminal neuralgia. Besides head to toe burning, I have neuropathic itch. All my peripheral nerves, inside and out, are sick. I’m finally having a sleep study in a few weeks. For more than fifteen years, I’ve only slept for three of four hour hours, at most, usually interrupted. Now it’s two- I go to sleep about 10PM, and wake up at midnight. When I’m falling asleep, there’s a revving of the heart and a need to vocalize if I don’t want to move. This is usually repetitive. These are DEFINITELY waking me up. Oddly, I’m wide awake after sleeping two hours and can’t recall any wake up process, I’m just awake again. If I happen to manage five hours or more, which happens a few times a month, THEN I’m tired. 🤷🏼‍♀️

  • @julierogers4473
    @julierogers4473 3 місяці тому

    What if you have parasites in your intestines? I have told my nurse practitioner that I have intstal parasites and you should have seen the look i got 😳..ni have been fighting on my own until I got to the point my body is so weak.. now on top of that my doctor put me on diazepam.. now I'm having extreme intestinal distress.. along with all the other symptoms that come with.. extreme dehydration/ malnutrition malabsorption 😭

  • @amarissaburtness4276
    @amarissaburtness4276 3 місяці тому

    Love your presentation! Most informative and well spoken video I’ve seen on this topic. Hope you continue to post videos. I’m sure it’s helping so many people. THANK YOU!!!

  • @Dananananananana
    @Dananananananana 4 місяці тому

    I'm 21 and I remember having symtoms since I was 9, I was diagnosed 3 months ago and it makes so much sense. Somehow I treated myself (before having a diagnosis) by drinking gatorade, eating salt and sitting upside down

  • @78twood
    @78twood 4 місяці тому

    ANYONE who reads or watches this, have your doctor check your b12 and d3 levels!!! I’ve been suffering for years and it TOOK YEARS Before my doctor thought to check those levels!! I felt like my “ lights” were going out is the best way to explain it. I felt better almost immediately after starting these 2 supplements! I just hope my nerve damage isn’t permanent. It can take 6 months to a year of supplements to get the full benefit ….

  • @paulgraystone4919
    @paulgraystone4919 4 місяці тому

    please any info on .. enviromental .. eg .. electro 4G/ 5G sensitive.. heavy metals weather modification, .. micro plastics, .. nano particulates, ( I live west coast ireland, a exit corridor for euro aroplanes, an age 73 )

  • @KetoGalAnn
    @KetoGalAnn 4 місяці тому

    Some helpful info BUT no mention of animal based foods solution. So misguided. We must eat pastured meats and definitely pastured eggs. An egg, the perfect combination of protein and fat macronutrients, wasn’t even mentioned! Raw milk is replete with healthy pre- and pro-biotics. This was nutritional malpractice! Is this person a paid shill from the “fruit and veggies” industry?!

  • @cathyblake4294
    @cathyblake4294 5 місяців тому

    I have POTS. I was finally diagnosed after about 7 years. I suspected it and mentioned it to my doctors. I was brushed off until my symptoms became undeniable.

  • @chesterwilberforce9832
    @chesterwilberforce9832 5 місяців тому

    OMG, I have been struggling with these symptoms for years now. The heart doctor thinks it's a heart thing. The PCP thinks it's everything from stress to depression to rheumatoid arthritis. My gastro keeps testing me and scoping me and finding nothing wrong. I've been tested for low T, low Estrogen, polio, Lyme's. I've had 2 colonoscopies, 2 heart attacks and three stents which have not fixed these symptoms. My labs keep coming back normal (this is the most frustrating thing.) I feel like a have a small case of the flu every day of my freaking life. Not sick enough to stay home, but certainly sick enough to make life miserable. I have stopped enjoying anything. My inability to regulate my body temp is the worst symptom. I'll go from wrapped up in a blanket with thermal underwear on sitting on a heating pad to sweating and shucking off clothes and back again all while simply sitting watching TV. My recent heart catheter held promise for relieving this heaviness I feel in my arms and chest and weakness but it didn't get better. I have an appointment with an arthritis doctor in two weeks and hope to get some help. This is miserable.

    • @143LoveConquersAll
      @143LoveConquersAll 3 місяці тому

      Please look up Dr Driscoll! After researching this for years and years, I think that most of us have issues with acetylcholine. Best of luck to you. Don't give up! 💝

  • @RobdeKlerk-qg6lc
    @RobdeKlerk-qg6lc 5 місяців тому

    It causes ms as well ???

  • @priscivolley
    @priscivolley 5 місяців тому

    Thank you for sharing this information. I am in constant investigation of myself and so far this is the condition that match in all symptoms. I also came across a video from Dr Lair Ribeiro, that alerts people about dysautonomia and he related this condition with low tocotrienol ( a form of vit E) this is found in a plant called urucun, native from tropical contries. I am now in process of testing it.

  • @geraldinenecastro3894
    @geraldinenecastro3894 6 місяців тому

    Dec 29 i am having bad nausea

  • @memesissydollar3080
    @memesissydollar3080 6 місяців тому

    ❤ Thanks for sharing ❤

  • @bethlyons6395
    @bethlyons6395 6 місяців тому

    I totally agree with your findings thankyou for your intelligent research and therapy.

  • @jfouts1979
    @jfouts1979 6 місяців тому

    Have any studies been done on non-diabetic sugar fluctuations within range but large swings? Leading potentially to nerve damage involving the autonomic nervous system?

  • @jfouts1979
    @jfouts1979 6 місяців тому

    I notice that you did not mention low copper....but I have found that many people (like me) that have iron issues....have the root of that problem caused by copper deficiency....copper deficiency leads to iron transport issues and anemia / low oxygen / extreme fatigue etc....

  • @neon.neutral
    @neon.neutral 6 місяців тому

    My notes... Supplements to try: Vitamin d-3 Iron Thiamine B12 Vitamin C (helps with Pain) In general: More salt Less Gluten Smaller, Lower Carb Meals Increase Fruit and Vegetable Intake Cacao for less fatigue Beets and Nitrates help with Exercise tolerance Easy Recipe Ideas Avo Toast Jicama + Guacamole Cut veggies carrots celery cucumber Wraps Nuts + Seeds Apples and Nut Butter Greek Yogurt and Fruit Edamame Celery + Cottage Cheese Premade soups: Butternut Squash Soup Garlic and Potato Soup Creamy Tomato Soup Oat Milk Cumin Carrot Soup

  • @taytay1336
    @taytay1336 6 місяців тому

    So we're and how do you get a proper diagnosis from

    • @DysSupport
      @DysSupport 6 місяців тому

      Your best bet is to find a doctor knowledgeable of dysautonomia and bring our Handout with you. Come prepared with a list of symptoms, in order of severity and a list of questions to discuss. Make a log over a week with recorded blood pressure and heart rate readings. Note what you are doing when you take them, sitting and standing and present this too to the doctor. The more you know, the better you can assist your doctor in pursuing testing. Good Luck! ttps://www.dysautonomiasupport.org/wp-content/uploads/2023/03/Dysautonomia-Handout-5_compressed-1.pdf

    • @DysSupport
      @DysSupport 6 місяців тому

      www.dysautonomiasupport.org/healthcare-provider-map/

  • @roborandy
    @roborandy 6 місяців тому

    Doesn’t Propranolol decrease melatonin? When is the best time to take it so sleep won’t be impacted?

  • @Jennifer-mk7qy
    @Jennifer-mk7qy 7 місяців тому

    EDIT: I’m sorry for my typos and bad grammar my phone is glitchy so much! Does anyone else have severe adrenal issues too?? I think adrenals are the extend nervous system kind of right? 🤔 and I Tourette syndrome, sleep apnea and asthma history! I have blood sugar issues but I had two normal a1cs over a year ago and I have been labeled a very extremely massive hypochondriac for 11 years but pretty much ever major claim ended up to come out to be true this year 😭 I’m getting a lot of ableism and gaslighting unfortunately from my family and I absolutely can’t take care of myself. I have extreme urinary excess and loss of bladder control and Brady and tachy almost an arrhythmia if not an arrhythmia. This is fun,lol but I’m grateful despite being told some pretty offensive things and being humiliated and shamed so much that I got diagnosed so quickly. I get my testing done February 2nd . Also the dr that originally diagnosed me , granted he’s very old for a dr and has been working professionally for about 45 years , always said I needed to see a psychiatrist and when I could not walk I forced myself to his office eventually after months in a wheelchair bc I was desperate and he got so frustrated and begged my mom to make me go to a psychiatric hopslital to be assested for a mental breakdown but I got assessed many times lol, it is baffling that a dr who knew of dysautonomia in 2020 didn’t think it could be that bad, plus adrenal issues that are bad too. Wonder if that’s common . What I’ve been through is extremely embarsssing and hurtful from many types of professionals and it has me tearing up thinking about it. And what I go through with people in gereral so often it’s tough. I probably don’t have POTS so idk what all is wrong with me I’m very upset I shut this out my head 247 and am constantly in a freeze state I was in a ginormous insane fight or flight earlier this year and I haven’t gotten therapy still unfortunately. I’m so depressed and I have no one to talk to . It seems everyone just hates that this happened to me and they resent me for it. I literally am in a survival mode so badly constantly and I can’t process or function cognitively either. Feel like I can never have children and prettt much confident I can’t but I wouldn’t anyways being so sick. I lost all contact with my family and they seem to hate me . They just don’t under stand and I just want someone to talk to and the er is the only time I can potentially get support nobody deserves to live worried about everything like that and consumed of any type of sickness. I will pray for our world everyday bc suffering seems inevitable for anyone almost now in all types of ways 🙏🏻

  • @SweetiePieTweety
    @SweetiePieTweety 7 місяців тому

    Word if you think it is a Snowman of that reference back to narrative learning of times takes for multiplication Often recommended for those with same memory issues dyslexia whatever label you want to put on that… yeah this is not going to equate to being able to do long math problems it’s a trick in a toolbox for a moment in time but it does not get the child to where they need to get to a level in their functioning to progress In a real applicable way to say algebra or any form of higher level math. Been there done that hit that wall

  • @raloufen4292
    @raloufen4292 7 місяців тому

    There is no sleep. There are no Drs

  • @taylormyers6952
    @taylormyers6952 7 місяців тому

    I can't tell you how grateful I am that I found this video.

    • @DysSupport
      @DysSupport 7 місяців тому

      We love to hear this!

  • @Ninjamom4
    @Ninjamom4 8 місяців тому

    Thank you for the information.

  • @janhensley3617
    @janhensley3617 8 місяців тому

    Thank you

  • @dshepherd107
    @dshepherd107 8 місяців тому

    What blows my mind is that you don't mention Myalgia encephalomyelitis tied to CFS & PEM?? The most common of the autonomic disorders, and now seen to be found in many Long COVID sufferers. Heck, you didnt even mention EDS. You might consider updating this video, & lose the music. Very agitating to lots of people with ME/ CFS. Btw, it can cause inflammation in the brain, spine, & peripheral nervous systems as well. It is a very serious disease affecting at least 70 million Americans. Might want to mention it since most doctors still dont know about it. Ive had it for well over a decade & have veen misdiagnosed multiple times, & untreated. As such, I’m now in the severe category. Know what you're talking about if your going to put out information on such a serious topic. Otherwise, you can send people down rabbit hole after rabbit hole, not knowing they’re missing the key piece of the puzzle.

  • @LotusLibra1973
    @LotusLibra1973 8 місяців тому

    Thank you for this. My general practitioner told me that the root of my issues was anxiety and that I just needed cognitive behavioral therapy. I pushed to see a neurologist out of my network and finally got the suggestions to take propranolol, nortryptaline and he was the one who recognized my hEDS along with my immunologist. Your information in this video helped me decide against Zolpidem (also prescribed by my GP) as I was worried about taking that living alone but also because of any residual impairment. I’m sincerely grateful for doctors who think outside the box to help us find a better quality of life. ❤

  • @wendyannh
    @wendyannh 9 місяців тому

    This is one of the single most annoying videos I have seen on UA-cam. The music is both maddeningly repetitious and distracting. The delays in the spoken content to wait for the drawings to happen make for content that is anything but easy to listen to.

  • @janetjones1456
    @janetjones1456 9 місяців тому

    I have neurogenic orthostatic hypotension which is NEVER discussed....as far as nutrition..I have migraine so foods are extremely limited..I have MCAS also..I realize pots is more popular..have no care team...waiting for an appt with a real doctor..the orthostatic director at the Cleveland clinic..sad part 6-7 month wait list 🥺😢💔..sodium triggers migraines by the way

  • @DavidLee-qd7fw
    @DavidLee-qd7fw 9 місяців тому

    No mention about cannibus ? Plus or minus ?

  • @dianarhyne
    @dianarhyne 10 місяців тому

    Hey folks, this is a nutritional deficiency in most cases… do research, don’t just take the drugs they give you, especially since they don’t cure this. EO NUTRITION, here on UA-cam, is a good place to start your education.

    • @dshepherd107
      @dshepherd107 8 місяців тому

      No it isn't. This is a big category for many autonomic related diseases. There are multiple ways it can manifest. I was the healthiest eater I know, was actually juicing at the time I started getting severe symptoms, was an endurance mountain hiker, a research scientist, and had other additional activities I was involved in. Then I had ME, PEM, & OI. It is just not that simple. The only thing that is true is that it's important to get proper nutrition so as not to exacerbate the condition.

    • @dianarhyne
      @dianarhyne 7 місяців тому

      @@dshepherd107 Well, I’ve since learned that Upper Cervical Instability, interfering with Vagus Nerve and vein function can be a cause. Turns out, it was my cause all along, for decades.

  • @mtob5086
    @mtob5086 10 місяців тому

    The main symptoms for me is exhaustion, heat and excercise intolerence, doing any form of physical activity IMMEDIATELY makes me feel exhausted hot and sweaty, cant leave the house on a hot day, as the sun makes me feel absolutely drained, and i feel like tearing all my clothes off just to cool down, its horrible.

    • @dshepherd107
      @dshepherd107 8 місяців тому

      Look up ME and CFS. I suspect you have it bc you have it, but it sounds like earlier stages, which is a positive

  • @simonram8505
    @simonram8505 10 місяців тому

    Can I use bisoprolol for the night time adrenaline? I am currently taking it in the morning, but my sleep is always extremely shallow. Will shifting this betablocker at bedtime help with the sleep?

  • @janetjones1456
    @janetjones1456 10 місяців тому

    Why is there NEVER any info about NOH???? WHY IS POTS TARGETED? I'm suffering from nOH and other issues brought on by Dysautonomia has ruined my life and keeps me homebound..HELP???!!! PLEASE

  • @ethanr9286
    @ethanr9286 10 місяців тому

    Thanks. Now I can understand the relation between Dysautonomia and nutrition

  • @Hammers-Mikey
    @Hammers-Mikey 11 місяців тому

    Hi i have just had fundplication surgery for a giant hiatal hernia. Can this cause Gastroperesis?? As my doctor cannot diagnose me and i seem to have all the symtons of it. I have been out hospital 8 weeks now but symptons started 2 weeks ago. I feel depressed and fed up with it .😢. Any advice would be helpful please. Thanks

    • @mandy7188
      @mandy7188 6 місяців тому

      Yes!! I have it because of my hital hernia Nissan surgery. Because of that surgery I can’t get a sleeve done. All they said I can do is watch my diet. Pills made me shake really bad

  • @thedoopa3169
    @thedoopa3169 11 місяців тому

    Its stupid because you can't work, but have to work to survive. So your at a job having constant heart palpitations, feinting ECT ECT to make ends meet but you can't work too much or you get denied.

  • @BedWords_
    @BedWords_ 11 місяців тому

    as a mast cell patient (along with the rest :P) the discussion of gen 2 antihistamines being designed *not* to cross the BBB was just a huge epiphany. gonna have to try out some hydroxyzine. speaking of mast cells, anyone discovered a sleep monitor that doesn't induce skin irritation yet? because that has stopped me from using my garmin regularly (though i suspect it's less accurate anyway)